Blood and Marrow Transplantation Long Term Management. Группа авторов
CHAPTER 36: Health‐related quality of life in adult and pediatric survivors Introduction Quality of life Clinical Features of Treatment with Allogeneic HSCT Health‐related Quality of Life Physical Function Adults Psychological function Social and role functioning Benefit‐finding and post‐traumatic growth Healthy lifestyle and health‐promoting behaviors Application to practice Interventions Summary References
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SECTION 3: Supportive care and patients reported outcomes
CHAPTER 37: Immunosuppressive agents and monitoring in long‐term survivors
GVHD Prophylaxis Agents:
GVHD Treatment Agents
References
CHAPTER 38: Nutritional support and nutritional supplementation
Introduction (Definition; subgroups)
Pathophysiology
Frequency/cumulative incidence
Risk factors
Surveillance/ screening
Prevention
Treatment
Recommendation for the survivors / general practitioner
References
CHAPTER 39: Daily routines and healthy lifestyle guidelines
Background
Education
Infection Prevention
Compliance with Scheduled Follow Up
Health Maintenance Screenings
Community/Home Support
Summary
References
CHAPTER 40: Prevalent psychosocial adjustment issues and solutions
Introduction
The patient and their support system: coping with stress in the long‐term care setting
The patient and caregiver: facing intimacy issues
Other quality of life issues for the stem‐cell transplant patient
Conclusion
References
CHAPTER 41: Complementary and alternative medicine in HSCT
Introduction
Natural products in HCT recipients
Mind and body practices in HCT recipients
Other complementary and alternative medicine
Safety of complementary and alternative medicine
Approach to CAM discussions
Future directions
References
CHAPTER 42: Impact of adherence in outcome of long‐term survivors
Introduction
Adherence
Non‐Adherence
Non‐intentional and intentional non‐adherence
HSCT a risk factor for non‐adherence
Recommendation for healthcare providers
Future research
Conclusion
References
CHAPTER 43: Prominent role of allied health professionals
Introduction
Immunizations
References
CHAPTER 44: Patient reported outcomes
Introduction
Basic concepts about PROs
Perceived health status
Physical function and symptom burden post‐HCT
Psychological aspects post‐HCT
Social aspects post‐HCT
Behavioral aspects post‐HCT