Information Practices and Knowledge in Health. Группа авторов

Information Practices and Knowledge in Health - Группа авторов


Скачать книгу
18] LEFEUVRE K., OLLIVIER R., La démocratie en santé en question(s), Presses de l’EHESP, Rennes, 2018.

      [LET 09] LETOURMY A., NAÏDITCH M., “L’émergence de la démocratie sanitaire en France”, Santé, Société et Solidarité, no. 2, pp. 5–22, 2009.

      [MAR 17] MARGAT A., GAGNAYRE R., LOMBRAIL P. et al., “Interventions en littératie en santé et éducation thérapeutique : une revue de la littérature”, Santé Publique, vol. 6, no. 6, pp. 811–820, 2017.

      [MOR 18] MORQUIN D., OLOGEANU-TADDEI R., “The Electronic Medical Record: Standardization issues and personalization of information for health professionals”, in PAGANELLI C. (ed.), Confidence and Legitimacy in Health Information and Communication, ISTE Ltd, London and John Wiley & Sons, New York 2018.

      [PAG 11] PAGANELLI C., CLAVIER V., “Le forum de discussion : une ressource informationnelle hybride entre information grand public et information spécialisée”, in YASRI-LABRIQUE E. (ed.), Les forums de discussion : agoras du XXIe siècle ? Théories, enjeux et pratiques discursives, L’Harmattan, Paris, 2011.

      [POL 15] POLIQUIN H., “Analyse critique et dimensionnelle du concept de santéisation”, Aporia, vol. 7, no. 1, pp. 17–29, 2015.

      [POU 09] POULAIN J.-P., Sociologie de l’obésité, Presses Universitaires de France, Paris, 2009.

      [STA 18] STAII A., “Connected health: Between common aspirations and specific interests”, in PAGANELLI C. (ed.), Confidence and Legitimacy in Health Information and Communication, ISTE Ltd, London and John Wiley & Sons, New York, 2018.

      [TET 20] TETE C., “Les documentalistes comme partenaire dans la prise en charge des patients en fin de vie”, Médecine Palliative, vol. 19, no. 1, pp. 3–6, 2020.

      [VIG 18] VIGNERON B., “Chapitre 6. Le management opérationnel des systèmes d’information”, in LOUAZEL M. (ed.), Le management en santé : gestion et conduite des organisations de santé, Presses de l’EHESP, Rennes, 2018.

      [WAL 98] WALTER J., Le Téléthon : Scène – Intérêts – Éthique, L’Harmattan, Paris, 1998.

      Introduction written by Viviane CLAVIER and Céline PAGANELLI.

      1 1 See: https://www.who.int/healthpromotion/conferences/9gchp/health-literacy/en/.

      2 2 Pôle interministériel de prospective et d’anticipation des mutations économiques, Prospective. E-santé : faire émerger l’offre française en répondant aux besoins présents et futurs des acteurs de santé, Synthesis, Edition Marine Automne, Nicole Merle-Lamoot, 2016. Available at: https://www.entreprises.gouv.fr/files/files/directions_services/etudes-et-statistiques/prospective/Numerique/2016-02-Pipame-e-sante-synthese.pdf.

      3 3 Picard R., Serveille H., Vial A., Technologies et connaissances en santé, Public report, December 2013. Available at: https://www.vie-publique.fr/sites/default/files/rapport/pdf/273726.pdf.

      4 4 “The totality of human behavior in relation to sources and channels of information, including both active and passive information seeking, and information use (Wilson 2000, p. 49)”.

      1

      Open Access as a Regulation of Scientific Information in Health

      1.1. Introduction

      At the time of writing (April 2020), a pandemic was spreading across the world, claiming the lives of hundreds of thousands of people. Medical research is at the front line in finding a suitable vaccine against Covid-19. More broadly, however, all research in the field of health contributes to possible responses to the disease, and to its wider management (development of Covid-19 tests by virologists, large-scale implementation of tests by veterinary researchers, etc.). A recent preprint [COL 20] has shown – through a scientometric approach – the breadth of the health fields mobilized around Covid-19 research [BRA 20]. Scientific journals and preprint servers have seen the number of submitted articles soar [HOR 20].

      The biomedical fields are well and truly present, but they are poorly represented in the acronym STM, which conveys a definition that is more representative of the economic and industrial actors (notably, the scientific publishers and their powerful STM association) than of the research fields and their communities. Hence, throughout this chapter, we have chosen to use the term “Health”, with the first letter capitalized. It is more unifying and closer to the French definition of the biomedical sector discussed in this chapter. However, one of the characteristics that allows these fields to constitute a sector is the role and the place that Open Access to scientific information has represented in the development of their content since the 1990s.

      This chapter aims to give an account of the regulations generated by Open Access and which today link the field of scientific communication with the field of Health. We will address the way these regulations affect the publication and dissemination models of digital scientific information. The aim is to provide an account of the nature of these regulations and the issues they raise regarding scientific certification, regulations and issues that are crucial in Health.

      The public and societal importance of the field of Health led to it being one of the first fields to switch from paper to digital journals in the late 1990s. As Momen [MOM 03] points out,

      Health is perhaps the area of most intense demand for greater access to scientific and technical information, partly because failure to obtain it can be literally fatal.


Скачать книгу